EvergreenHealth Research is part of a large Huntington's disease consortium through the National Institutes of Health.
Huntington Study Group: The Huntington Study Group (HSG) is a non-profit group of physicians and other health care providers from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease. The HSG was formed in 1993, prompted by the recognition that clinical research in Huntington disease (HD) required the participation of large numbers of research patients (subjects) under the cooperative care of skilled and experienced research physicians.
ClinicalTrials.gov Identifier: NCT01574053
Enroll-HD: A Prospective Registry Study in a Global Huntington Disease (HD) Cohort.
Enroll-HD is a longitudinal, observational, multinational study that will integrate two existing Huntington's Disease (HD) registries, REGISTRY in Europe and COHORT in North America and Australia, while also expanding to include sites in Latin America and Asia. With no end date and annual assessments, the goal of Enroll-HD is to build a large and rich database of longitudinal clinical information and biospecimens. This database will serve as a basis for future studies aimed at developing tools and biomarkers for progression and prognosis, identifying clinically relevant phenotypic characteristics, and establishing clearly defined endpoints for interventional studies.
Who may be eligible to participate?
Investigator: Pinky Agarwal, MD, FAAN
For more information: contact EvergreenHealth Research Services at 425.899.5385 or email EvergeenResearch@evergreenhealth.com.